The PhD and normative time

Recent personal disability-happenings have me reconsidering launching into a PhD program right from my MA.  This shakes me in many ways.  I’m in the fast-lane, ready for my “career.”  What might it mean to wait another year, if not two more, for the long-awaited doctorate?  In the context of disability justice, well, my comrades might simply give me the nod knowing that I gotta do what I must do.  Good days, bad days–crip time is tricky against the normative ebbs and flows of legitimated knowledge production.

Who says I’m not a scholar already, anyway?  Because I am.

In her 2011 Society for Disability Studies Annual Conference paper presentation “Cripping Anti-Futurity, or, If You Love Queer Theory So Much, Why Don’t You Marry It?” Ellen Samuels writes:

At the University of California, Berkeley, where I earned my Ph.D. degree in English, graduate student education is structured by an administrative construct called, with no hint of irony, “normative time,” referring “to the amount of time it takes ideally for a student in a particular discipline to complete a doctoral degree.”

Samuels goes on to quote the book In a Queer Time and Place:

Finding that the normative time model could not fully accommodate my queer, disabled, parental existence, I have sought other temporal models to think through these multiplicities. Judith [Jack] Halberstam offers the concept of “queer time” shaped by “nonnormative logics and organizations of community, sexual identity, embodiment, and activity” (6).  Halberstam’s queerness refers not so much to sexuality as to the “outcome of strange temporalities, imaginative life schedules, and eccentric economic practices” (1).

I am glad that Samuels is starting to think about queercrip time in the academy.  I know many, many other disability scholars have written about this topic, especially as it relates to accommodation in the academy as either grad students or professors.  So I let myself pause alongside my disability-happenings, think with the happenings and not against them, and I actually don’t feel so bad with the thought of letting things settle.  In fact, it feels relieving to validate my own crip time in the academy.  We’ll see what happens.

Advertisements

An Open Letter of Inquiry to the Craftspeople of Thomas Fetterman Incorporated on Behalf of The Alisha Maria Vasquez Crutch-Queen Chip-In Fund

Hello Thomas Fetterman Inc.,

My name is Brooke Willock and I am writing on behalf of my best friend Alisha Maria Vasquez in regards to your handmade custom design crutches.  Alisha has been disabled since birth.  She was born with a short left leg, and had about twenty surgeries between the ages 5 and 15 in her life to lengthen her leg six inches, to be only 3 inches shorter than her right leg (had she not had the surgeries, it was predicted that her left leg would be 12 inches smaller than her right).  Alisha has been on Supplemental Security Income (SSI) since childhood to help pay for health insurance.  For most her life she’s used hospital-grade run of the mill crutches whose tips always break and are so squeaky I always know when she’s coming home from school I can hear her three city blocks away it seems.  She’s starting to hunch over more and is in chronic neck/back/hips/knee pain nearly everyday, and she’s had callouses forming on her palms for years and year.  She jokes that she has callouses forming on her callouses.  We learned about your company in an advertisement in New Mobility: Life on Wheels magazine, and to be honest did not expect to find such beautiful, durable, and serious crutches.  I truly believe that Alisha deserves a pair of crutches just like the ones you all craft.  If she needs these adaptive devices on a daily basis–it’s like a part of her embodiment–shouldn’t she have some of the best kind out there?  She just turned 27 in November 2011 and has a long life ahead of her.  I think these crutches would be great for her.

All that said, I would like to inquire about two things in particular regarding this investment.  If the crutches are custom-made and non-adjustable, then what happens when she wants to wear some high heals and she’s suddenly grown 3-4 inches?  We’re also concerned about any insurance package in the possible instance of such lusty crutches being stolen, like when Alisha goes out dancing and leaves her crutches leaning against the wall near the corner unattended.

Thank you very much for your time and consideration, it is greatly appreciated.  We look forward to hearing form you.

In gratitude,

Brooke Willock

Above:

Custom Wooden Underarm Crutches by Ed Openshaw

Wood underarm crutches are steam bent and locked in the forms for several weeks to keep the elegant shape.  Ed Openshaw then uses a drawknife to hand form the taper of the crutch.

These crutches come complete with your choice of my Slim-Line or Rubber Underarm Pads.  Be sure to state your choice when ordering.

Poron Crutch Hand Grips have a tough PVC vinyl shell covering a shock absorbing polyurethane closed cell sponge center giving you a comfortable hand grip that is easy to clean and prevents skin sheer.  Your choice of my patented Tornado and Performance gel tips have Absorbalite™ gel polymer inside. Absorbalite™ gel has the ability to eat shock by transforming it into heat energy instead of transmitting it up the crutch shaft into our upper bodies.  Reducing these negative ground impact forces will help mitigate overuse syndrome keeping us vertical into the future.

Ed crafts this classic style wood crutch from hand selected Rosewood, Oak or Rock Maple.”

Above:

Aluminum Underarm Crutches

LiteStix Aluminum custom Underarm crutches are shock-absorbing, durable, silent and strong.

This handsome underarm crutch is made by TiSport and will provide you with state of the art comfort, function and good looks. It is custom made to fit the measurements you supply. Like all our custom crutches they never make a sound because there are no adjustment holes to egg-out and rattle. They are built-to-last and to make you last. The underarm piece is hand fashioned from 1″ aluminum tubing.

Even the handles are welded. They are a generous 4-1/2” wide rather than the standard 4″. The handgrips are my new durable Saddle Grips made with black natural cowhide leather wrapped over a shock-absorbing cellular urethane pad.

My patented Tornado GT or Performance GT gel tips have Absorbalite™ gel polymer inside. Absorbalite™ gel has the ability to “eat shock” by transforming it into heat energy instead of transmitting it up the crutch shaft into our upper bodies. Reducing these negative ground impact forces will help mitigate overuse syndrome keeping us vertical into the future. LiteStix Aluminum Underarm Crutches come complete with your choice of my new Slim-Line or Rubber Underarm Pads.”

Daniella Meads-Barlow, Rest in Peace

Daniella, type-1 diabetic, died in her sleep Tuesday morning, November 8th from low blood sugar.  Many blogs and JDRF advocates are clinging to her story and death with rhetoric that emphasizes the dire need for a “cure.”  I am also an advocate for the cure.  But I am also very critical of it when socioeconomic intersections and historical contexts are taken for granted in such rhetoric.

In e-mails that I’ve received in the past day or two, Daniella has been framed as a victim of chronic disease.  Words like “sad” and “too soon” are attributed to her death.  Phrases such as, “This is the reality of this disease.  It happens without prejudice…to families that are working hard to keep their children safe,” are circulating on Facebook and the diabetes blogosphere.  It is without question that diabetic experiences are marginalized, rendered obtuse and thus scary.  Here I would like to acknowledge Daniella’s life with the utmost respect, and I would like to try to imagine a way that we can think about and talk about Daniella’s death (and the thousands of deaths like hers that correspond to incurable disease) without embedding such deaths with fear and anxiety.

Underlying all of this, I am left thinking about Western medicine’s emphasis on the cure, and its stigmatization of incurable conditions.  I am also left thinking about Western science and medicine’s mission for longevity.  Some might call it biopolitics, or biopower.  Some might call it capitalism, and its heteronormative conceptualizations of time and place.  Well, if we center Daniella’s life experiences with incurable disease, if we center her death within her own experience of temporalities and spatialities, maybe she isn’t victim after all and maybe death isn’t so scary, after all.  A crip time and place, perhaps?  Rest in peace, Daniella.

Daniella Meads-Barlow

 “Most people are deeply reluctant to believe that bad things happen to people who do not deserve them, or seek them, or risk them, or fail to take care of themselves.  To believe this as a general proposition is to acknowledge the fragility of one’s own life; to realize it in relation to someone one knows is to become acutely aware of one’s own vulnerability.”

–Susan Wendell, The Rejected Body

Disabling the “Choice Paradigm” in the Abortion Debate and Enabling Complexity

Okay, so I am trying to contain my excitement.  But who am I kidding?!  Enerfly, a new social networking and social movement site for disability, just released my first e-publication outside of my sweet WordPress blog.  HOLLA!

Here’s the awesomeness, re-posted for your reading pleasure and for the sake of my own little e-archive:

The Pro-Life Action League made their annual appearance at my campus this week.  As they were obstructing my path to class, I held up a folder against my face in protest while I quickly walked passed.

Pro-life versus pro-choice.  Reproductive rights versus reproductive justice.  What’s the difference?

Native sovereignty activist and scholar Andrea Smith argues that “a reproductive justice agenda must make the dismantling of capitalism, white supremacy, and colonialism [and ableism!] central to its agenda…We must reject single-issue, pro-choice politics of the mainstream reproductive rights movement as an agenda that not only does not serve women of color [and women with disabilities] but actually promotes the structures of oppression which keep women of color [and women with disabilities] from having real choices or healthy lives.”[i]

Native sovereignty issues are also disability justice issues.  The potential for radical coalitional work here is profound.  But, more on that later.

When it comes to disability, the mainstream reproductive rights movement simply isn’t enough.  Not only is it not enough, but as Andrea Smith points out, it actually promotes the structures of oppression by not confronting the systemic root causes of disabled women’s health and wellness.

Can disabled women be mothers?  Can nondisabled women, or disabled women, knowingly carry to term a fetus with “defective genes”?

With the historical legacy of eugenics, and interlocking systems of oppression, these are difficult questions that the reformist binary of pro-life vs. pro-choice cannot “answer.”

Caroline, a wheelchair-user, reflects on her experiences with doctors regarding reproductive issues: “To acknowledge what I feel I have been denied is almost too painful to think about.  It’s safer to tell myself that I don’t want to have children anyway.”[ii]  Among the friends, family, and physicians of disabled women who were surveyed in a research study, three fourths “believe that maternal disability is cause enough to restrict childbearing.”[iii]

The struggle with reproductive issues has been a significant aspect of disability justice projects since the 1970s disability rights movement.  Ujima, disabled at the age of twelve, testifies in her early forties, that “there are people out there who think that they have the right to tell you that you shouldn’t [have a baby] simply because you’re disabled.  Many years ago I had an abortion that I didn’t really want because everyone I told…all said that it would be wrong for me to go ahead with it.  At the time I remember my doctor telling me that I should consider being sterilised so that I wouldn’t make the mistake of having another unwanted pregnancy, but the fact is that I did want it and have been wanting to have another baby ever since.”[iv]

Many disabled women have spoken out against the forced sterilization and abortions they have experienced, and against the nonconsensual use of Depo-Provera, a birth control hormone injected every three months, by both doctors and personal assistants.  Yvonne Duffy, a self-identified  “severely disabled” wheelchair user who contracted polio at age two, “was particularly disappointed” when she learned that a “prominent advocate of sex education for the [cognitively disabled] suggested injections of Depo-Provera as birth control for those of us who cannot manage it [sexual intercourse, menstruation and changing pads/tampons regularly] for ourselves.”[v]

The elusive history of U.S. eugenics underlies much medical research and actions towards disability and reproduction, and permeates in genetic research today.  On selective abortion and disability, feminist biologist Ruth Hubbard notably begs the question, “Who should and should not inhabit the world?”  Hubbard examines current situations surrounding selective abortion where pregnant women are required to sign either “yes” or “no” to prenatal testing which tests women’s fetuses for various “disabilities.”[vi]  If a woman “chooses” to test, and her tests are “positive” (Hubbard discusses the major discrepancies and unreliability of many of these tests in terms of their results), then the woman is left to “decide” whether or not to “burden” society with a child with a supposed disability.  Hubbard discusses the underlying eugenic ideologies at length and how today’s rhetoric “of the concern for the quality of life” in genetic testing and research, and in many other public sectors as well, is like the “arguments about lives not worth living.”[vii]  Ever heard the horrible ableist statement, “I’d rather die than be disabled”?  Such sentiments are directly reflective of the root causes that reproductive justice campaigns need to tackle.

Importantly, disability reproductive justice campaigns and activists need to be vigilant about co-optation by nation-state and pro-life interests.  Just on September 2, 2011, The Pro-Life Action League published an article praising a mother for “choosing” life for her conjoined twins.  This is a stark example of pro-life co-optation of disability reproductive justice issues.  The rhetoric of “choice” is individualist language that functions to mask underlying structural oppressions which greatly impact reproductive issues for disabled women, women of color, and nondisabled women with “disabled” fetuses.  Native sovereignty activist Andrea Smith argues that the

“consequence of the “choice” paradigm is that its advocates often take positions that are oppressive to women from marginalized communities.  For instance, this paradigm often makes it difficult to develop nuanced positions on the use of abortion when the fetus is determined to have abnormalities.  Focusing solely on the woman’s choice to have or not have this child does not address the larger context of a society that sees children with disabilities as having lives not worth living and that provides inadequate resources to women who may otherwise want to have them.”[viii]

It is not simply a matter of “choice” for abortion or for life; several critical factors come into play such as the historical context of eugenics, structural issues such as healthcare, educational opportunity, community support and accountability, which, although the woman “chose” to have her conjoined twins, by staying within the paradigm of choice The Pro-Life Action League does not take into account root causes that shape reproductive issues especially surrounding disability.

Image featured in my Enerfly article


[i] Smith, Andrea. Conquest: Sexual Violence and American Indian Genocide. Cambridge, MA: South End Press, 2005, 104-105.

[ii] Shakespeare, Tom, Kath Gillespie-Sells, and Dominic Davies. The Sexual Politics of Disability: Untold Desires. London and New York: Cassell, 1996, 15.

[iii] Waxman, Barbara Faye. “Commentary on Sexuality and Reproductive Health.” Women with Physical Disabilities: Achieving and Maintaining Health and Well-Being. Eds. Danuta M. Krotoski, Margaret A. Nosek, and Margaret A. Turk, eds Baltimore, MD: Paul H. Brookes Publishing Co., 1996, 182.

[iv] Gillespie-Sells, Kath, Mildrette Hill, and Bree Robbins. She Dances to Different Drums: Research into Disabled Women’s Sexuality. London: King’s Fund Publishing, 1998, 12.

[v] Duffy, Yvonne. All Things Are Possible. Ann Arbor, MI: A.J. Garvin and Associates, 1981, 24.

[vi] Hubbard, Ruth. “Abortion and Disability: Who Should and Should Not Inhabit the World?” The Disability Studies Reader, Third Ed. Ed. Lennard J. Davis. New York and London: Routledge, 1997, 114-18.

[vii] Hubbard, 117.

[viii] Smith, 100.

“Phantom Orgasms”: Cripping the “Evolutionary Mystery” of Female Sexuality

This post was also published on Feministing‘s Community Blog. =)

Cripping: like the analytic of “queering,” cripping centralizes disability in analyses that otherwise often remained “normed.”  Importantly, through its critical deconstruction and analytical awesomeness, cripping also tries to make new meaning, or rather, help us understand meanings in other ways that do justice to marginalized experiences.

How do we understand female orgasm?  It is easy for us to resort to science when such a paradox comes to mind–and, of course, it is easy for us to picture the normalized white, nondisabled young female when we try to imagine the possibilities of female sexual pleasure.

Wired magazine is an award-winning site about technology and culture that reaches masses and masses of online users, in the U.S. and globally.  According to Alexa.com, a web information company, Wired is ranked #650 in the world, and #326 in the U.S.  The time spent in a typical visit to the site is about three minutes, with 76 seconds spent on each pageview.

With so much user traffic, what is Wired writing about that’s so captivating?  *Drumroll please* …announcing, the world’s greatest mystery to science: female orgasm.

Female Orgasm Remains an Evolutionary Mystery” – pronounced in big, bold letters as one of today’s main headlines on Wired’s homepage, next to another featured techy article titled, “Amazon’s Future is So Much Bigger Than A Tablet.”  In about 500 words, Wired writer Brandon Keim reports on how the “female orgasm has resisted yet another attempt to explain its elusive evolutionary origins.”  Nearly 100 comments have been posted following the article in the 6 hours since the piece was published.

Look, feminist writing on this topic is old news.  Old news.  We know that “orgasm,” or female sexual pleasure, cannot be explained by science, evolution, and pathology alone.  For science to deduce female sexual pleasure to evolutionary reasoning is in and of itself a hetero-patriarchal move.  But Wired apparently doesn’t realize that (maybe because they’re hetero-patriarchal?).  Plus, the site needs viewers/readers, so it can make more money, I get it, so they pull out an old topic for debate that people love to joke about, yadda yadda, I get it.  There’s “new scientific findings,” etc and etc.

So, in light of all the serious, rigorous research and analyses out there by feminist scholars, activists, and writers (do the research yourself, even though unfortunately Brandon Keim can’t hone his skills to properly research issues he writes about, which is why I am here in attempts to hold him accountable), I am going to take a slightly different spin on my feminist analysis on this age-old mystery of female sexuality.  I am going to crip it.

Science and medicine has a pervasive history of pathologizing deviant bodies (like Black men and women, like women in general, like people with disabilities) and its technologies pursue today.  A classic example of this is doctors trying to use the authority of science/medicine to examine Sarah Baartman’s “oversized clitoris” and attributing her features to pathological Black female hypersexuality.  This pathologization not only masks the root causes of violence against women (and women of color in particular), but justifies it (“she was asking for it”).  Again, lots of radical feminist analysis on this issue of dominant science and female sexuality.  In a similar yet seemingly subtle manner, the article on Wired perpetuates longstanding ideological assumptions of hetero-patriarchy in understandings of sexuality and orgasm.  Brandon writes, “Also perplexing is that many women require clitoral stimulation to achieve orgasm, not penetrative action.  If female orgasms were meant to encourage sex, the opposite ought to be true.”  The opposite ought to be true?  For whom and for what purpose?  Let’s think about definitions.  Who defines what “sex” even means?  What actually constitutes a female orgasm?  How can these definitions be used against us, while be advantageous for others?  And they’re not just definitions.  There’s material effects.

Let me reiterate: lots of feminist work has been done surrounding this issue.  Please do the extra research about this at your expense.  I am going to crip this analysis for two reasons: 1) centralizing disabled women is important and political, and 2) co-thinking sex and disability helps us to re-think dominant notions about sex.

Mainstream hospitals, doctors’ offices, and relations with professional health care workers (such as personal assistants), are some of the most notorious institutionalized spaces of oppression against disabled people.  Moreover, underlying patriarchal ideology in the mainstream medical paradigm (see previous blog post and scroll down to “The Authority of Medicine”) make access to adequate healthcare for disabled women a particularly challenging and oftentimes degrading process.  For example, “Ann explains how, after she became paralysed, she could find no information about sex that was of any use to her; what was available was for paralysed men” (Gillespie-Sells et al 52).  Ann’s experience reflects the hetero-patriarchy embedded throughout medical practices and research: research like that presented by Brandon Keim.  Several studies point to similar conclusions.  For instance, Whipple et al report that the “overall quality [of their postinjury sexuality education by health professionals] was considered poor.  Generally included with information on bowel and bladder functioning, the materials that were distributed were of poor quality, outdated, and usually targeted for men.  The focus of female sexuality education was on giving, rather than receiving, sexual pleasure” (79).  Furthermore, scientist Margaret Nosek reports that many women have “relayed encounters with physicians who either said they did not know how their disabilities affected sexual functioning, said nothing at all, or provided inaccurate information” (25).

There is a general and urgent consensus by women with disabilities that information and resources must be made accessible and available.  However, “lack of information is not the only problem here,” feminist bioethics philosopher Abby Wilkerson argues, “providers’ assumptions may prevent them from understanding the situation” (20).  While adequate and accessible healthcare is paramount, underlying assumptions in the medical model must be simultaneously transformed.  Or else The Female Orgasm will forever remain an evolutionary mystery, and the subjugation of female sexuality will consequently live on.

In the mainstream medical paradigm, the “most common view [of sex] is goal directed” (Whipple et al 69), which, likened to hetero-normative sex, involves vagina/penis contact, intercourse, and the climactic genital orgasm.  Simiarly, Brandon in Wired writes that “the male orgasm is, in evolutionary and practical terms, a fairly straightforward thing — it makes men want to have sex more often, thus continuing their lineage, and is achieved with ease.”  We can see how Brandon assumes that sex is automatically hetero-normative, or, goal directed.  Premised upon goal directed sex, the medicalization of sex and disability requires corrective technologies to perform at best according to such standards.  “Within this framework, [disabled] men…seek penile implants to restore their erections, and women with hip contractures who cannot have conventional intercourse have hip surgery to have intercourse in socially prescribed positions” (Waxman 184).  Failure to rehabilitate “normal” sexual performance renders people with disabilities as asexual beings.

The elusive history of U.S. eugenics underlies much medical research and actions towards disability and reproduction, and permeates in genetic and evolutionary research today.  On selective abortion and disability, feminist biologist Ruth Hubbard notably begs the question, “Who should and should not inhabit the world?” (108).  In a capitalist for-profit economy that valorizes docile able-bodiedness and de-values “disability,” the who should and should not inhabit the world? question seems to prod at the crux of ableist assumptions and oppression.  On the ideology of ability and sex, disability theorist Tobin Siebers argues that “sex may be the privileged domain of ability.  Sex is the action by which most people believe that ability is reproduced, by which humanity supposedly asserts its future, and ability remains the category by which sexual reproduction as such is evaluated.  As a result, sex and human ability are both ideologically and inextricably linked” (139-40).  Thus it is an analytical imperative to unravel and de-link sex and ability so that sexual identity and disability may be reconceived—and so sexuality in general may be understood more complexly.

The rendering of sexual agency within self-representations and medical research by and for women with disabilities re-conceptualizes and re-imagines the possibilities of sex.  Whipple et al explain that “the alternative view [of sex] is pleasure directed, which can be conceptualized as a circle, with each expression on the circle considered an end in itself” (69).  As advocates of this alternative view, Whipple et al produced a study that was “designed to validate the reported experiences of women.”  They “documented in the laboratory that women could achieve orgasm from fantasy alone, without touching their bodies” (70).  Okay, I know this might seem strange at first glance.  Documented women cuming in the lab?  But, at a closer look, I think this lab documentation of hot crip pleasure has potential to disrupt dominant understandings of goal directed sex.  Whipple et al use the tools of dominant discourse to authorize the re-signifying stroke of what it means to orgasm.  Their research findings reflect an emphasis on diffuse sexuality, whereby “pleasure may be heightened by concomitant stimulation of an erogenous zone either above or at the level of injury” (72).  For instance, “Some of us who have no sensation in our vaginas or clitorises find that we can experience equivalent orgasms through sensations in other parts of our bodies” (Morris 89).  Disability rights activist Tessa explains that “[my partner and I] get far more enjoyment from sex than we ever thought possible.  We use mouth and nose and facial stroking a great deal, with back tickling as well…I am very ticklish in certain places and I can get an orgasm from being stroked there (for example, under my arms)” (Morris 89).  Tessa’s orgasm testimony disrupts and challenges dominant notions of goal directed sex, such as that deliberated in Wired.

Whipple et al are clearly implicated within that which they oppose; however they turn dominant concepts of the evolutionary nature of female sexuality against itself by debunking such scientific assertions: “Although it is claimed that women with complete SCI cannot achieve orgasm or that their orgasms are labeled as “phantom” orgasms, subjective reports of women do not support these contentions” (72).  Not only do they re-conceptualize orgasm, but they talk back to the mainstream medical paradigm’s fictitious notion of “phantom” orgasms that has been used against disabled women to delegitimize their sexuality.  Researchers Kaufman et al similarly denounce the use of “phantom orgasms.”  They candidly write that an “excellent example of the way information gets twisted is the term ‘phantom orgasm.’  This was a term that researchers came up with to describe something their subjects reported…The ‘expert’ explanation was that these people were merely experiencing a body memory they knew before their injury” (136).  They finish by turning the tables on the “expert” researchers as the ones who are ill-equipped to explain variations in sexual experiences: “Of course this kind of definition is more about narrow-mindedness of the researchers than what was actually happening” (136).  The mysteries of sex will not be found in genetic coding alone, or evolutionary science studies, that’s for certain.

Works cited

Gillespie-Sells, Kath, Mildrette Hill, and Bree Robbins. She Dances to Different Drums: Research into Disabled Women’s Sexuality. London: King’s Fund Publishing, 1998.

Hubbard, Ruth. “Abortion and Disability: Who Should and Should Not Inhabit the World?” The Disability Studies Reader, Third Ed. Ed. Lennard J. Davis. New York and London: Routledge, 1997. 107-119.

Kaufman, Miriam, Cory Silverberg, and Fran Odette. The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain and Illness. San Francisco, CA: Cleis Press Inc., 2003.

Morris, Jenny, ed. Able Lives: Women’s Experience of Paralysis. London: The Women’s Press, 1989.

Nosek, Margaret A. “Sexual Abuse of Women with Physical Disabilities,” 153-173. “Wellness Among Women with Physical Disabilities,” 17-33. Women with Physical Disabilities: Achieving and Maintaining Health and Well-Being. Eds. Danuta M. Krotoski, Margaret A. Nosek, and Margaret A. Turk, eds Baltimore, MD: Paul H. Brookes Publishing Co., 1996.

Siebers, Tobin. Disability Theory. Ann Arbor: The University of Michigan Press, 2008.

Whipple, Beverly, Eleanor Richards, Mitchell Tepper, and Barry R. Komisaruk. “Sexual Response in Women with Complete Spinal Cord Injury.” Women with Physical Disabilities: Achieving and Maintaining Health and Well-Being. Eds. Danuta M. Krotoski, Margaret A. Nosek, and Margaret A. Turk, eds Baltimore, MD: Paul H. Brookes Publishing Co., 1996. 69-80.

Wilkerson, Abby L. Diagnosis: Difference: The Moral Authority of Medicine. New York: Cornell University Press, 1998.